This is a beautiful video that a girl from my gastroschisis yahoo group put together. She is trying to get a grant funded for research into the causes, prevention and treatment of gastroschisis. Ez is now a youtube super star!
If you feel so inclined, go to :
to donate. I guess we are in competition for this grant and the more donations we have, the better chance we'll have at getting the grant.
I know from our personal experience with Ez, that the information regarding the causes of gastroschisis is limited and the treatment of it is varied. He continues to throw up daily and we continue to worry if he is keeping enough down to grow healthy and strong. He also has developed an umbilical hernia which he will need to have surgically corrected in a year or two. It is a tough way to start out life, but these "gastro" babies are fighters!
This second video is very short and explains more about gastroschisis, the statistics, and the grant.