This is a beautiful video that a girl from my gastroschisis yahoo group put together. She is trying to get a grant funded for research into the causes, prevention and treatment of gastroschisis. Ez is now a youtube super star!
If you feel so inclined, go to :
http://www.networkforgood.org/Pca/Badge.aspx?BadgeId=108725
to donate. I guess we are in competition for this grant and the more donations we have, the better chance we'll have at getting the grant.
I know from our personal experience with Ez, that the information regarding the causes of gastroschisis is limited and the treatment of it is varied. He continues to throw up daily and we continue to worry if he is keeping enough down to grow healthy and strong. He also has developed an umbilical hernia which he will need to have surgically corrected in a year or two. It is a tough way to start out life, but these "gastro" babies are fighters!
This second video is very short and explains more about gastroschisis, the statistics, and the grant.
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4 comments:
Colin had a pretty bad umbilical hernia--all the doctors said that when they start walking that they stomach muscles strengthen and they resolve. We even saw a specialist about it. But they were right.
What a great video she put together, all of those babies are such fighters and so is Ez. I cant wait to see him walking and running around too. A true fighter and survivor that little guy is!
I commented on the other site but I was just thinking about that music...I love that song, its on one of my fav movies of the moment, 50 first dates.
Thanks for sharing that Tirsa.
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